A teenager in the US suffering from a rare sleep disorder called ‘Sleeping Beauty Syndrome’ slept for 64 days straight in her longest episode of illness yet. Nicole Delien, 17, from Pennsylvania said she’s missed out on Thanksgiving, Christmas, birthdays and even the first family trip to Disney World.
They went to various hospitals until a doctor at Allegheny General Hospital finally realised that she was suffering from the rare sleeping disorder Kleine-Levin. “Affected individuals may go for a period of weeks, months or even years without experiencing any symptoms, and then they reappear with little warning,” the Kleine Levin Syndrome Foundation website stated.
In addition to excessive sleeping, symptoms include disorientation, hallucination, child-like behaviour, binge-eating and periods of hyper-sexuality when awake, according to an Oxford Journals report. That report said the disorder predominately affects young males.
Yahoo! News has more background on Sleeping Beauty Syndrome that reportedly only affects 1,000 people around the world:
“The National Institute of Neurological Disorders and Stroke (NINDS) says Kleine Levin Syndrome affects primarily adolescent males (70 percent) and can often result in an individual sleeping for up to 20 hours at a time. While there is no treatment or cure for the condition, many individuals living with the condition simply outgrow it as they age, usually over the course of 8 to 12 years.”
The cause of Kleine-Levin Syndrome is unknown, both medical sources indicate. Medication helps spread the sleeping episodes further apart for Nicole. The last one was in March, but Nicole said she’s scared of when it will happen again. The family recently went on a national talk show because they want other families to know about the rare disorder.
Nicole Delien has been taking medication, and her last episode of the syndrome occurred in March.
Source IBN and The Inquisitr